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9. Breaking Down the SPIDER Outcome Measure for EDS and Hypermobility

Breaking Down the SPIDER Outcome Measure for EDS and Hypermobility

If you’ve ever felt like your EDS or hypermobility symptoms are “all over the place” — from joint pain to digestive issues to fatigue — this episode is for you.

April Patterson dives into the SPIDER outcome measure, a powerful tool that captures the full-body impact of connective tissue disorders like Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder (HSD). Unlike traditional assessments that focus only on joint flexibility, the SPIDER evaluates eight key systems including neuromuscular, cardiac, gastrointestinal, and psychological domains.

Learn how this questionnaire helps identify symptom patterns, puts lived experience at the centre of care, and guides better treatment decisions — so patients and practitioners aren’t left guessing.

Whether you’re a clinician, a patient, or supporting someone with EDS, this episode will help you better understand what’s really going on beneath the surface.

Take the SPIDER test here: april-uqnuykdm.scoreapp.com

Disclaimer: Before making any health changes, consult with a healthcare professional.

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